> orphanet Newsletter 2008-10-29

Following a 2005 study published in the Lancet that described the prevalence of Fabry disease in young cryptogenic stroke patients, the Sifap network (Stroke In Young Fabry Patients) has been designed to provide more data on the association between Fabry disease and stroke in young patients. A preliminary seven month pilot phase involving some 700 patients allowed the research team to establish the proof-of-principle, and the Sifap network, a multicentre study headed by the University of Rostock in Germany, officially launched in January 2008.

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